“Forset Hayah” launches to aid children with rare diseases! Did you know that Egypt never had an organization dedicated to children born with rare diseases?
Well, thanks to “Forset Hayah” we do now.
What’s Forset Hayah?
Under the auspices of the Ministry of Social Solidarity, ‘Forset Hayah’ was officially launched as Egypt’s first foundation dedicated to mobilizing community efforts, The foundation which focuses on resources to treat children with rare diseases.
Also, the foundation will also work on raising awareness about rare diseases. This comes along with the necessity of early detection, and their key role in recovery.
Not only but also, Forset Hayah will work with all community stakeholders including government and non-government organizations. In addition to healthcare specialists, pharmaceutical companies as well as individuals to reduce the burdens borne by children with a rare disease and their families and caregivers.
“Investments associated with the development of advanced gene therapies. This have proven effective in treating rare diseases often mean that their price represents a huge challenge. By uniting to contribute to treatment provision, we can collectively achieve the ‘impossible’. The Presidential Initiative for SMA patients in the light of the efforts provided by H.E President Abdel Fattah El Sisi is testament to the success of community-wide civic-government collaboration.” said Ghada Mounib, Founder and Chairperson of the Board of Trustees of Forset Hayah.
This all came as a result of the famous “Save Rasheed” campaign that helped the young boy with Spinal Muscular Atrophy.
